Thursday, February 13, 2014


Around 9:30pm, I went to check on John before going to bed.  Just as I was about to put my hand on his bedroom door, I stopped dead in my tracks as thoughts began racing through my mind:  I just walked across the living room without furniture walking, I'm able to enter his room without waking him and the one that stung my heart I was never able to do this with either of the girls.  

There is no denying that I have moments when I feel like I missed out on life.  Those are natural thoughts that anyone would have.  I just feel like it's up to me (and only me) to focus on the positive.  I had a good life and am now living a great life.  Sure, I was never able to check in on the girls before I went to bed, but I was able to hold them in my arms and kiss them goodnight, which is something that not every parent is able to do on a nightly basis. For that, I will be forever grateful.  


  1. HI I have seen your blog several times and finally decided to write to you. I too have DRD. I was diagnosed at age 50 after suffering strange symptoms for a couple of years. I was getting worse and worse, afraid I had Parkinsons or ALS. Unlike you my symptoms prior to menopause were pretty minimal .I now am 62 , have 2 new grandchildren and feel like I have gotten my life back.There is so much more to this strange disorder, which for me is worsened by stress, lack of sleep , cold weather overexertion etc. But on a daily basis s I give thanks that it is treatable . I'll stay in touch

    1. Hello! I am so pleased that you wrote this message. It means so much to me that you have taken the time to read my blog. I'm hoping to reach a large audience so when my book comes out I will really be able to get the word out about DRD. It speculated that there are others out there who have been misdiagnosed.

      I think we have a lot in common. I too, struggle when I am stressed, lacking sleep and drastic changes in weather. When I go to bed at night, I'm never quite sure what the next day will bring me. I'm sure you understand what I mean by that. :)

      Again, thank you for writing. It means SO much!!